Eden had apts. today with Neurology and Neonatology. It made for a long day because they were both during her afternoon nap. I made sure to skip her morning nap so she would sleep on the way down. She slept barely over an hour but it was enough to allow her to be awake for her apts. Her first one was with neonatology. They are the ones who ask A LOT of developmental questions...is she sitting, is she crawling, etc. and then they also want her to do a certain amount of things right there so they can check them off her list. God is so good...she is completely on target for her adjusted age (because she was 3 weeks early) and only behind on two things for her actual age. The only reason she said that was because she just didn't do those two things there in the office. She didn't display the pincer grip and she didn't completely pull herself up to a standing. But she does both of those things at home so I say she is right on target! In her defense, the chair was a bit too high for her to pull herself up! She is amazing and they don't want to see her back until she is about 18 months!! YAHOO! Today she weighed 18 lbs 8.8 oz. and was 28.25" long.
Neurology was equally impressed. We got to see our resident that we have seen from the first time we were there for IS. She was ready to pop when we were there last and now her babe is already 6 months old! She couldn't believe how well Eden was doing. She really enjoyed playing with her and seeing how well she is developing. She said as much as she likes us she doesn't want to see us back for a YEAR!! We didn't get to see our regular doctors though because they were in a meeting. We did however see one that we saw when we were in the NICU back when Eden was born. He said he has seen a few Aicardi syndrome girls and was super impressed with Eden. He even said it makes him second guess the diagnosis but also agrees there is a mild end of the spectrum and that is where she probably falls! God is so good...have I said that yet?!!!
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