Eden had a check up today (4-19-12) in Iowa City. We had to have an MRI done at 10:30. Then we headed up to see the doctor. The radiologist hadn't read them yet but the PA told us there didn't look to be any changes. She thought that maybe there was even a little improvement! The cyst on her brain might even be a little smaller. She said she would call if the radiologist had anything else to say about it. They didn't say when they wanted to see us back but I am guessing it would be in the next 4-6 months.
**UPDATE** We got a call today (4-20-12) and the doctor said the radiologist read Eden's MRI and he believes that the left ventricle is larger then before. He wants to see her in a month to do a full sedated MRI. They are talking about having to do a shunt and even mentioned the possibility of removing that cyst in the long run. I feel scared all over again. I thought yesterday went so well, but now this...
We had a lot of time to kill in between apts. so we got to go sit down for lunch at Old Chicago. It was a nice relaxing meal! Eden 'talked' in her car seat. She seems to have found her voice today! She does this high pitch squeal. She takes a deep breath and lets it out and keeps going until she is out of air! It's so cute...and loud! She wore herself out while we were eating so we had some quiet time too! We ended up letting her take a long nap in the car before going into the hospital for our next apt. at 3:30.
We saw Ophthalmology at 3:30. Dr. Drack checked her eyes for tracking things and said she was seeing very well. She tested her vision and said she is a bit far sighted and has an astigmatism. She isn't worried about either. She just told us to watch for her eyes going crossed. They didn't have to pin her eyes open this time to scan them but they did still have to dilate them. Instead they used a tiny device and were able to see that her left eye is still completely healthy and her right eye is still the same. She was extremely happy with her sight. She even used the word 'mild' (as in she thinks Eden has a 'mild' case of Aicardi syndrome). We are praying for this to be the case! In her twenty years of service she said she has maybe seen a handful of girls with Aicardi. It's nice to see someone who has at least seen it before as it is a really rare syndrome! We don't have to go back to see her until the end of September!
God is so good! Another great day!
Weight: 12 lbs. 2oz.
Height: 24"
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